Every year, approximately 13,500 children are diagnosed with cancer in the U.S. More than 80% of children with cancer now survive 5 years or more, however cancer is still the second leading case of death in children (behind accidents). September is observed as Childhood Cancer Awareness Month in the U.S., a time to spotlight the types of cancer that largely affect children, and to help raise funds for research and family support.
A childhood cancer diagnosis can be devastating to a family, both emotionally and financially. That’s why it’s important for families to reach out and get the support they need. In recognition of Childhood Cancer Awareness Month, here are 6 resources to help you support the fight against childhood cancer.
- Ronald McDonald Houses: If your child is being treated at a hospital away from home, Ronald McDonald Houses provide free lodging. They also sponsor family rooms in some hospitals, offering services that can include a kitchen, showers, and laundry facilities.
- The National Children’s Cancer Society: This organization provides emotional and educational support as well as financial assistance. Help is provided for expenses such as meals during treatment, long-distance telephone cards, lodging, and health-insurance payments.
- The American Cancer Society: The American Cancer Society offers a wide variety of information about childhood cancer, including advice on dealing with the diagnosis and financial and insurance issues.
- The American Childhood Cancer Organization (ACCO): In addition to providing information about diagnoses and treatment options, ACCO co-sponsors an online community. Participate in a discussion group, read others’ stories, or post your story. You can also sign up for various listserves to communicate by e-mail with other members.
- CureSearch: CureSearch offers information, videos, and webinars about a variety of topics, including how to receive support from the school after a diagnosis of childhood cancer. It also has an app that helps families and caregivers organize treatment dates, access more resources, and confidentially share information with caregivers.
- Alex’s Lemonade Stand Foundation (ALSF): ALSF provides financial help with travel, lodging, and meal expenses. The organization also offers a program for siblings of children with cancer, a Parent-to-Parent support network, and a free treatment journal.
We hope this information helps you support the fight against childhood cancer. Just remember that even though a cancer diagnosis for your child can be daunting, the right combination of effective treatment and emotional and financial support can be crucial. If you are looking for a specialty pharmacy to help with your child’s cancer diagnosis, we invite you to download our complimentary oncology guide. This guide will help answer any questions you may have about choosing a specialty pharmacy.